CEO & Founder of STARS, A-A, The Heart Rhythm Charity, AF-Association and Patient Representative
Trudie Lobban MBE, FRCP Edin, established STARS (Syncope Trust And Reflex anoxic Seizures) charity following the diagnosis of her daughter with RAS and at the request of her paediatric neurologist in 1993. STARS has developed into an international non-profit organisation and Trudie is recognised worldwide as a patient expert on syncope and unexplained loss of consciousness.
Trudie was instrumental in organising and campaigning to introduce new standards in the UK for arrhythmias and sudden cardiac death with the successful launch of an extra chapter in the National Service Framework on Coronary Heart Disease by the government and Department of Health in the UK in 2004/5. Trudie went on to establish the Arrhythmia Alliance - The Heart Rhythm Charity®: working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias.
A-A is a coalition of charities, patient groups, patients, carers, medical groups, policy makers, politicians, government officials and allied professionals. Although these groups remain independent, they work together under the A-A umbrella to promote timely and effective diagnosis and treatment of arrhythmias.
In 2007, due to the high demand for information and resources on atrial fibrillation, Trudie launched the AF Association.
Trudie has provided a unique partnership between healthcare professionals, politicians, policy makers, patients and caregivers and allied professionals. Trudie was recognized for her Services to Healthcare when being made a Member of the British Empire (MBE) in the Queen’s Birthday Honours list in 2009.
The Charities Commission has congratulated her on providing such a service. All three charities are now international and established in more than 40 countries; Trudie is President/Chair internationally.
She was recognised for her contribution to medicine when she was made an Honorary Fellow of the Royal College of Physicians.
Trudie is Chair or member of numerous Advisory Boards both nationally and internationally and is author/co-author of numerous publications and research projects. She sits on many committees – NICE, NHS, PHE, NICOR, NIHR, NHS SCIP, NCSPLC, AF Screen, BHRS & BCS Council, and numerous research committees – the only non-medical person to do so. Her services are called upon globally where she presents or contributes on the importance of patient involvement and HCP education to improve outcomes in the patient care pathways and delivery of health services. She is also an author and co-author of numerous medical papers relating to cardiac arrhythmias.
Trudie has authored and co-authored numerous papers, appeared in many journals, written a chapter for ‘Cardiology Clinics’ as well as involvement in countless media outlets. She has been interviewed on numerous TV and radio in the UK and globally including Australia, Argentina, Uruguay, Italy and media tours of USA talking on syncope, AF and arrhythmias. Trudie regularly meets with government officials, ambassadors, health ministers, royalty and Prime Ministers as well as Members of the European Parliament to highlight the need for improved services for people with cardiac arrhythmias and those delivering the service.